tag:blogger.com,1999:blog-315151022752951218.post863756652472996540..comments2023-10-26T04:46:32.082-05:00Comments on Women with Cancer: Cue the Kellers Jodyhttp://www.blogger.com/profile/14311014636548513060noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-315151022752951218.post-73350507643407821472014-03-27T01:25:32.327-05:002014-03-27T01:25:32.327-05:00I read your blog. Jody, You are right. Perfect tho...I read your blog. Jody, You are right. Perfect thoughts. Thanks for sharing your views with us. Keep Sharing. Anonymoushttps://www.blogger.com/profile/04388223507422986903noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-74698284435880034382014-01-28T19:58:48.592-06:002014-01-28T19:58:48.592-06:00Brilliantly written and thanks for doing so. If B...Brilliantly written and thanks for doing so. If Bill Keller wanted to write about end of life care, palliative care, hospice care or cancer, all he had to do was focus on his father's own treatment - he need not bash Lisa Adams in the process. Everyone is entitled to their own way of moving through cancer or any disease and the Kellers frankly should just leave patients who blog alone. If patients want to share their experiences, so be it.Jean Annehttps://www.blogger.com/profile/06283475084273144552noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-9208156815788241072014-01-24T00:59:22.140-06:002014-01-24T00:59:22.140-06:00Took me time to read all the comments, but I reall...Took me time to read all the comments, but I really enjoyed the article. It proved to be Very helpful to me and I am sure to all the commenters here! It’s always nice when you can not only be informed, but also entertained!<br /><a href="http://www.globalpayerresource.com" rel="nofollow">Healthcare BPO payer services<br /></a>Anonymoushttps://www.blogger.com/profile/04490611312342203401noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-76082289036915432122014-01-17T22:49:15.254-06:002014-01-17T22:49:15.254-06:00I for one am grateful for these uneducated, inaccu...I for one am grateful for these uneducated, inaccurate and just plain stupid people. How do two people get the opportunity to write for such organizations. On the positive:<br />Number 1. look at the attention these articles are bringing to the writing of our illnesses. I have metastic breast cancer too and I write a blog on the Huffington Post spilling my guts every time I thing it may help.<br />Number 2. Writing about ones illness and delivering the messages via socia media is helpful. It has been extremely helpful to me. I think it also will help Twitter's stock price as they are my "go to" for updated information from such places as Sloan Kettering, The Cleveland Clinic, Dr. Susan Love, the Susan G. Komen Foundation and the many Lisa Adams out there.<br />3. The access to these accounts give me peace and like you said, information of what we are actually living with.<br />4. Sharing goes far beyond cancer. I get so much information from Autism Speaks. So do other families.<br />I'm bored with politics. We are a nation divided, have been so for a very long time and all I hear on the news channels are blah blah blah. I would much rather read about Lisa Adams and others going through similar things as myself cheering them on. In ending, thank you to the "Kellers" for their ignorance and unempathetic attitudes. Let's flood Twitter and the blog world with what we live with.<br />Lisa MastersAnonymoushttps://www.blogger.com/profile/00237441544327785489noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-7629835282925783672014-01-15T19:41:10.310-06:002014-01-15T19:41:10.310-06:00Thanks Jody. Perhaps the Keller's unfortunate,...Thanks Jody. Perhaps the Keller's unfortunate, uneducated journalism will pave the wave for change on how cancer is depicted in future articles by all journalists. Perhaps journalists will now take the time to really research metastatic breast cancer before writing anything. So, in that sense…it has been a good wake up call. When Angelina came forward with her op ed piece last year, I found most journalists were completely uneducated about BRCA gene mutations and the feelings/decisions accompanying cancer risk. It is an obligation of journalists/reporters to get the story right--do the research, interview the experts. I would say this would be even more important when writing about a patient with cancer- which is highly patient specific. When writing about someone with cancer …it also seems an ethical must for journalists to take a step back and ask themselves, is doing this or saying this in any way insensitive to the person I am writing about? It is clear that the Keller's did none of the above. The articles say way more about the Kellers than Lisa Adams. <br />Amy Byer Shainman<br />BRCA Health Advocate<br />The BRCA Responder<br />http://thebrcaresponder.blogspot.com BRCAresponderhttps://www.blogger.com/profile/05451190359972552269noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-51698402772040129702014-01-15T19:11:04.495-06:002014-01-15T19:11:04.495-06:00Jody, thank you for including a link to the Pew Re...Jody, thank you for including a link to the Pew Research report. I had been considering writing a post and your long-distance encouragement was what tipped me over the edge to do it. In it I try to explain to newcomers and outsiders what exactly is going on with health care and social media -- and why it matters.<br /><br /><a href="http://www.pewresearch.org/fact-tank/2014/01/15/the-social-life-of-health-information/" rel="nofollow">The social life of health information</a><br /><br />Thank you!Unknownhttps://www.blogger.com/profile/09575172683862762880noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-74945464466540042882014-01-14T11:35:40.689-06:002014-01-14T11:35:40.689-06:00Lauren,
My take on the Kellers is that they had a ...Lauren,<br />My take on the Kellers is that they had a beef about cancer afer their own cancer experience and Lisa happened to get in their way.<br /><br />If you look at some journalism feature stories, you see the gut of the article in the center and can easily see how the writer looked around for a "human subject" to personify the topic. <br /><br />This was one of the most offensive things I've seen.<br /><br />Why they can't let Lisa be Lisa is a question I hope they both are musing about today. Perhaps they learned something?<br /><br />And thanks so all of you -- I'm thrilled that the realities of metastatic breast cancer are coming clear through the fog. Thousands of women face these difficulties daily, including me.<br /><br />Ann,<br />I'm well familiar with you and your blogging:) And was not suprised that she herself had had a scrape with cancer. I live with metastatic cancer, you do, Lisa does. I'm not going to detail what and where I am. All I'm clear with is that the Kellers's experience - Emma's own DCIS and the death of her father - rendered them incapable of seeing cancer in any other light. It isn't about Lisa as much as piss-poor journalism masquerading as op-ed. It is about Lisa in that the Kellers picker her to project their mutual anxiety. Disgusting all the way around.<br /><br />Thanks to you all for your comments and support. <br />~jms Jodyhttps://www.blogger.com/profile/14311014636548513060noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-88158114722795017742014-01-14T10:42:06.287-06:002014-01-14T10:42:06.287-06:00Hi Jody, Great insights here. Thank you. It's ...Hi Jody, Great insights here. Thank you. It's quite baffling to me how both Keller's could be so off the mark on so many things... <br /><br />There are countless disease-related issues worth discussing and no topic is off limits as far as that goes if it's done correctly, but somehow they both veered way off track and as many have mentioned, they almost came across as bullies. Why they chose to zero in on Lisa and make some kind of example out her, is beyond me. Guess it backfired though!<br /><br />As far as social media and the cancer patient - they're completely out of the loop. <br /><br />Thanks for sharing your insights. Loved seeing a post from you, my friend. <br /><br />Nancy's Pointhttps://www.blogger.com/profile/07646849408841387692noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-24217779540508152832014-01-14T08:50:32.148-06:002014-01-14T08:50:32.148-06:00Perfect, Jody. Thank you for this. ~Catherine Perfect, Jody. Thank you for this. ~Catherine Facing Cancer Togetherhttps://www.blogger.com/profile/10399771668991931841noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-52882969592972868942014-01-13T22:58:05.807-06:002014-01-13T22:58:05.807-06:00I stand with Lisa and will remain standing, with h...I stand with Lisa and will remain standing, with her and everyone else's blogs I read. While lucky enough to have had an incredible support system through my cancer "journey," none of my real-life friends get it like my blog friends. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-34213211115881798452014-01-13T22:54:59.360-06:002014-01-13T22:54:59.360-06:00Well said Jody, as always.Well said Jody, as always.Dr. Michael A. Wosnickhttps://www.blogger.com/profile/16345203700409340375noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-8583491000212571642014-01-13T22:02:58.801-06:002014-01-13T22:02:58.801-06:00Oops, typo galore. My blog is butdoctorihatepink....Oops, typo galore. My blog is butdoctorihatepink.com. And, the link that I discuss it: http://www.butdoctorihatepink.com/2014/01/istandwithlisa.html<br /><br />I do stand with Lisa. And am angry about this treatment, obviously.Ann aka ButDoctorIHatePinkhttps://www.blogger.com/profile/06952736107114454660noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-30014125435828536082014-01-13T22:00:33.455-06:002014-01-13T22:00:33.455-06:00I wrote about this in my blog too, http://www.butd...I wrote about this in my blog too, http://www.butdoctorihate.com. It really could be any of us these people went after.<br /><br />One thing I found interesting - Emma Keller had DCIS years ago - and BLOGGED about it. She said she was so distraught she had to be on anti-anxiety from the time of her biopsy until she was declared cured, 40 days later. She was in tears, telling her doctor she couldn't take it anymore.<br /><br />Yet Lisa, and I, live with metastatic cancer. I have had a liver resection, gamma knife, 7 different chemos, sepsis and 6 surgeries and I've not cried about not being able to "take it." In fact, I use my platform as best I can, to help women who are undergoing the same thing I am and help them with their diagnosis - as does Lisa.<br /><br />How dare that weak-willed woman and her husband attack a strong women like Lisa? It's disgusting.<br /><br />Many of us have blogged this subject and I am thinking I will do a blog round-up. It is important that people know that we who blog, are not doing anything other than helping other women who are in our situation.Ann aka ButDoctorIHatePinkhttps://www.blogger.com/profile/06952736107114454660noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-29880924040777502412014-01-13T20:05:47.763-06:002014-01-13T20:05:47.763-06:00I, too, am appalled by the Kellers' writings. ...I, too, am appalled by the Kellers' writings. But at least it is drawing some attention to the real experience of Metastatic Breast Cancer that Lisa Adams articulates so well, and with so much graciousness. She will speak eloquently for us to a much larger audience now, and that is a good thing.beth cioffolettihttps://www.blogger.com/profile/09300116274007165612noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-64674249341820370572014-01-13T19:09:58.726-06:002014-01-13T19:09:58.726-06:00Jody, thank you for this. I, like so many others, ...Jody, thank you for this. I, like so many others, was appalled by the articles - just wrong on so many levels! You've written so clearly, thank you.Julie Goodalehttps://www.blogger.com/profile/11409261967805631648noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-87688970899189471212014-01-13T19:06:32.169-06:002014-01-13T19:06:32.169-06:00Nicely said Jody. I am struggling with why the Kel...Nicely said Jody. I am struggling with why the Kellers can't simply let Lisa do Lisa. Why they decided to pick on her...it seems just wrong on a basic human level. <br /><br />There is no right way or wrong way for that matter, to do cancer, and get through it. <br /><br />LaurenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-39747539706755497282014-01-13T19:02:23.684-06:002014-01-13T19:02:23.684-06:00Thank you.Thank you.Ask a Breast Cancer Survivorhttps://www.blogger.com/profile/13874796559838281048noreply@blogger.comtag:blogger.com,1999:blog-315151022752951218.post-4826146906687085412014-01-13T18:59:49.602-06:002014-01-13T18:59:49.602-06:00You speak for many of us and do so quite eloquentl...You speak for many of us and do so quite eloquently. Thank you, as always, for clarity and spirit in your response!Ask a Breast Cancer Survivorhttps://www.blogger.com/profile/13874796559838281048noreply@blogger.com